Why I am Me: All about CHARGE Syndrome

Why I am Me: All about CHARGE Syndrome

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 Author  Carry Ward & Marie Patterson, OAM
 Year Published  2011
 Type  Book
 Category  Syndromes

Why I Am Me is a story about a boy called Sam who has CHARGE Syndrome and his friend Jess. As the story progresses Jess learns about CHARGE Syndrome and the challenges Sam faces on a day-to-day basis. Written by Carry Ward and Marie Patterson with illustrations by Penny Levett, the idea for this book was sparked by questions asked by a young person with CHARGE. As a result the book is written from a unique perspective. The story is supported by medical information, diagrams and photographs of children and young persons with CHARGE in New Zealand and Australia.